Carers newsletter - edition no.14

Print Friendly and PDF

Welcome to the latest edition of our carers newsletter, providing carers and relatives with information on the support available within the Trust and the county. 

Carer Passports

We have developed a carer passport to help support and inform carers of those accessing LPFT services.

For more information email lpft.carers@nhs.net

Carers Lanyard and ID cards

To accompany our carers passport we now also have lanyards and carer ID cards that you can use when visiting your loved ones and liaising with staff.

Email our carers email address above to get one sent to you.

Carer Champions in Acute Services

We are delighted to share with you that we now have four carer champions in acute services at LPFT. These carer champions are dedicated to supporting carers of patients across our acute wards of Connolly Ward, Charlesworth Ward, Ash Villa and Ward 12.

Visiting on wards

If someone you are caring for is on one of our wards, please contact staff on the ward and ask about the specific arrangements they have in place to facilitate you seeing and having contact with your loved one.

One to one support/individual advice

We have a dedicated carers email address  which you can email any questions, queries or concerns to during this challenging time. You can also contact us if you would like a one-to-one call, even if it’s just for a chat! You can make contact on lpft.carers@nhs.net.

Lincolnshire County Council - general support for carers

Lincolnshire County Council (LCC) has a general advice page for carers which has information on a range of topics, including benefits and entitlements, emergency care planning and carers assessments.

More information can be found online at www.lincolnshire.gov.uk/support-carers

Latest guidance for carers from LCC can be found at                                 

https://www.lincolnshire.gov.uk/downloads/file/3907/carer-guidance-covid-19-final-updated-22-04-20

North East Lincolnshire

There is now a single point of access (SPA) in North East Lincolnshire, which includes Young Minds Matter.

You can call NAViGO on 01472 256256, option 3 for 24/7 mental health support in North East Lincolnshire. For young people’s mental health support, call Young Minds Matter 01472 626100 (for out of hours support you can also call 01472 256256 option 3).

North East Lincolnshire - Young Carers Assessment

The link below gives outline information for young carers and adult carers in the northeast Lincolnshire area. It also contains a telephone number which to enable people to contact the Carers Team and request an assessment.

Information for The Young Carers Team can found at www.carerssupportcentre.com/nel/young-carers

Giving birth is momentous – the excitement, anticipation, bravery and challenge were huge for me. To find out three days later that your gorgeous, sweet, perfect 10 toes and fingers new baby has had a massive stroke at some point recently, stops your world in its tracks. Woah! That was not supposed to happen…

So began the rollercoaster of emotion, the need to suddenly be ‘A Grown Up’ - the endless medical appointments, the interminable form filling and the slow seeping away of the life I had imagined for myself as a romantic day-dreaming teenager. I learnt the medical approach of the time – basically do nothing and see what happens, then address it with corrective action. That did not sit well with me and so I took initiative. I learnt about brain development and plasticity, the importance of nutrition and the impact a quiet environment and early nights had on her wellbeing and my sanity. I learnt to swallow my boredom as we began each day’s two-hour physio regime and put on my jolly face for another rendition of The Wheels on the Bus. I learnt patience and the need to stand up for someone. In fact, I learnt to fight passionately - I became a Mother Lioness (and apologised to those who felt the sharp end of my exhaustion, grief, aloneness and despair).

I wish families did not have to fight to get attention/ support/ funding when they are already dealing with so much. And I hope things might change so those following us have more energy to focus on the things that really matter – loving their children, perhaps even their poor partner too! But, what I now know is that once I found someone who got what I was going through from their own lived experience, things felt a little more possible. At last, someone who really ‘got it’. I swallowed the pill of understanding that I have to do this in some form for the rest of my life and that is just how it is, which is actually OK, perhaps even how things are meant to be. I realised I am resilient and resourceful and if I look after myself, I can keep doing this. I can rise to this challenge.

It has been a long struggle internally to learn that when life presents you with lemons, it’s easier to stop wishing for plums instead and learn to press those lemons into delicious refreshing special lemonade.  Maybe it comes with age too, a gentle settling into the way of things, accepting what is here in my every day and finding ways to notice peacefulness, the rays of sunshine, the simple beauty of the natural world around me and that wonderful moment when the penny drops and her face lights up (like the time she suddenly understood that Mary Poppins was not in love with a chimney sweep AND Baron Von Trapp).

My ‘beloved dorter’ as she used to sign off, is now 24-years-old and although still mostly dependent on me, is beginning to unfurl her wings and experience life for herself. Finally, she has a diagnosis of autism to go with the other labels and it genuinely feels like we have built a solid foundation as we face the next cliff edge together – that being the end of college life and her EHCP and exploration of some other purposeful occupation and gradual move out from under my wing… or should I say paw? I marvel at her bravery and am in awe of her as I imagine what life might feel like from her perspective. Quite something. Life is certainly interesting!

 

Older People & Frailty Divisional Support

If you would like information, support or advice about your caring role, please contact our Older Adults Carer Lead, Jules Weldon at lpft.oacarers@nhs.net

Visiting on the wards changes regularly as COVID safety guidelines are amended by the Trust.  Please speak to the ward staff before planning a visit.  If you are caring for someone in our Older Adults Inpatient Services and would like to send messages, letters or photographs, these can also be sent to lpft.oacarers@nhs.net and we will ensure they are printed and given to your loved one.  

LPFT Dementia Support Service

If you or someone you know has been diagnosed with dementia or mild cognitive impairment, our Dementia Support Service can offer you information and guidance on how to live as well as possible with the diagnosis.  We can provide information and guidance relating to the diagnosis, as well as supporting carers/ loved ones with how they can support the person living with the diagnosis as well as maintain their own wellbeing.

If you would like more information about the service, email lpft.dementiasupportservice@nhs.net or call our Single Point of Access Contact Centre on 0303 123 4000 where you will be put through to the relevant team.

 

Below are a list of other contacts which you may find useful in supporting you with your caring role.

Age UK - Providing support for older people and their carers.

Tel: 03455 564 144

Web: www.ageuk.org.uk

 

Alzheimer’s Society - Providing support for people with dementia and their carers.

Tel: 01522 692681

Web: www.alzheimers.org.uk

Email: lincoln@alzheimers.org.uk

 

Total Voice - Providing Advocacy for Carers

Telephone: 01522 706580

Text: 07860 018887

Email: TVL@voiceability.org

 

The Silver Line - A free 24/7 confidential telephone support for Older People.

Telephone: 0800 470 80 90

Web: www.thesilverline.org.uk

Email: info@thesilverline.org.uk

Young Carers

Often, young carers supporting someone with poor mental health are not recognised as such, yet trying to help someone who may be really distressed can be one of the hardest things to do. Young carers may be offering compassion, empathy and encouragement to parents struggling with their mental health by talking to them, listening and trying to understand their problems. Often, young carers worry about the person they care for while they are at school, making it hard to concentrate. They may be unable to spend time with friends and feel lonely and isolated. Young carers supporting someone with poor mental health are not as readily identified as those young people who carry out more practical care.

Contact youngcarers@lincolnshire.gov.uk by email or call 01522 553275.

 

Here4You advice line for children, young people and parents

Lincolnshire children, young people and parents can contact the Here4You advice line for mental health and emotional wellbeing problems on 0800 234 6342 (24/7). More information can also be found at www.lpft.nhs.uk/young-people/here4you 

 

Adult Carers 

If you are aged 18+ and support a relative or friend with tasks such as washing and dressing, paying bills, transport, emotional support, health appointments, medication and domestic tasks, you can get help with your caring responsibilities. This can be accessed by arranging an initial conversation with the Lincolnshire Carers Service.

The team will discuss your caring role and any problems you are experiencing and then work with you to find solutions. There is a huge range of support that is available to unpaid carers within the county including information and advice, benefits support, regular newsletter and updates about events happening in the community, a Carers Emergency Response Plan (CERS). If the team are unable to resolve a problem during our initial conversation then a statutory Carers Assessment may be considered if your needs are complex and require more specialist and on-going support.

If you have not already accessed support in your caring role and would like to, you can contact lpft.carers@nhs.net for more information.

If you would like to complete the referral yourself you can contact Lincolnshire County Council Carers Team 01522 782224.

My name is Carmen and I am one of the original Carer Champions. My job is to support carers and relatives of our patients in Conolly Ward at Peter Hodgkinson Centre in Lincoln. I started in this position in January last year as a (initially) 2 month secondment but here I am 14 months on and still going strong.

Most of my role entails weekly/daily phone calls to carers providing updates about their loved ones’ progress and I offer them support and a kind ear to listen to their concerns and offer reassurance. If they wish it, I continue contact with them throughout the whole admission until discharge. Some people require a lot of information because this is their first experience with mental health services and they do not know yet what it is going to happen or what to expect, so in these cases, the contact tends to be more regular and closer. This is one of the parts that I enjoy the most about my job, to be fair. I find that giving the carers a first good experience with our services completely changes the way they will perceive it and being given that opportunity is a privilege.

I love my job, it gives me a great sense of fulfilment and I know I help people every day, even though I find myself having to deliver bad news quite often due to the nature of the ward. Ever since I started, I told myself I would always be honest with carers and I would never make any false promises. I do feel like people appreciate it because they know what to expect. Most of the carers I have supported let me know how grateful they are to me, and that makes me feel like I am making a difference. I am very happy that the Trust decided to invest in carer support ,giving me the chance to discover who is behind our patients, supporting them every day and making their lives better.

 

You can contact the Carers team through our dedicated email address lpft.carers@nhs.net

You can contact the Involvement team if you would like to get involved through our dedicated email address lpft.involvement@nhs.net

 

Do you care for a family member?

Do you need support and education?

Join our established group, online every other Thursday evening! 

For further information on how to join, please email donna.bradford@nhs.net

Recovery College courses

Lincolnshire Recovery College offers free educational courses on mental health and wellbeing, and is open to everyone (including carers) aged sixteen and above. The courses are designed and delivered by people with lived experience of mental ill health, qualified trainers and health professionals. The College offers carer specific courses such as one on Compassion Fatigue and more are being developed with carers needs in mind.

Visit www.lpft.nhs.uk/recovery-college to find out more.

 

Veterans Support in Lincolnshire

Have you or your loved one served in the British Armed Forces?  If so, you might benefit from a chat with the Specialist Veterans Service to improve your knowledge of the support available.  It might be that the support you receive for your mental health can be enhanced via referral to Operation Courage.

East Midlands Operation Courage Tel: 0300 323 0137

Crisis Line 24/7 Tel: 0300 323 0139

 

Help for carers and relatives

Single Point of Access (SPA): 0303 123 4000

Mental Health Helpline: 0800 001 4331 (24/7)

Samaritans: 0330 094 5717

Lincolnshire Carers Service: 01522 782224 | Email: carersservice@lincolnshire.gov.uk

Healthwatch: 01205 820892 | Email: info@healthwatchlincolnshire.co.uk

Patient Advice & Liaison Service (PALS) ULHT: Lincoln County Hospital 01522 707071 |

Grantham 01476 464861 | Boston Pilgrim 01205 446243 | Email: pals@ulh.nhs.uk

Patient Advice & Liaison Service (PALS) LCHS: 0300 123 9553  | Email: LHNT. LincsPALS@nhs.net

 

Carers Support WhatsApp Group

LPFT has a carers support WhatsApp group, which is a  supportive group that enables carers to share information and advice with one another and acts as a sounding board. It is a closed group and is a safe space to share, ask for     advice and chat in general.

If you would like to be added to this please email lpft.carers@nhs.net 

Volunteers Please…

As the group has grown so large, it has been decided it will be split into smaller groups to maintain relevance and connection by becoming diagnosis specific. We are looking for carers to volunteer to be moderators for the groups. LPFT staff will support each group’s administration but it is a group run by carers for carers. Please be in touch if you are interested in helping. We would LOVE to hear from you!

Please email Donna Bradford at lpft.carers@nhs.net

Help for carers and relatives

Single Point of Access (SPA): 0303 123 4000

Mental Health Helpline: 0800 001 4331 (24/7)

Trust HQ: 01522 309200

Email: lpft.carers@nhs.net 

Samaritans: 0330 094 5717

Future editions

If  you have any articles for the next edition of the carers newsletter, please send them to lpft.carers@nhs.net

Thank you 

Thank you to members of our Carers Council and everyone who has contributed to this edition of the LPFT carers newsletter. 

We look forward to receiving more articles, information and stories for our next edition. 

Accessibility tools

Return to header